1. Characterize how older adults manage their personal health information (PHI).
2. Explore how stakeholders such as family, friends, and providers help older adults manage their PHI.
3. Create a model of information management needs and practices.
4. Develop design recommendations for tools to meet personal health information management (PHIM) needs.
Conduct in-depth interviews with older adults to understand their personal health information management needs and practices
We conducted a series of focus groups to explore how older adults conceive of and use personal health information in their day-to-day lives. Then, we conducted one-on-one interviews with older adults in their homes, to characterize their personal health information management needs. By visiting their homes, we examined how older adults do things naturally.
Understand how older adults manage personal health information over time
We followed a select group of older adults over several months. We aimed to better understand their daily needs, challenges, and information management strategies through home visits and phone interviews. We also aimed to understand how changes in health and other life issues may impact information management practices.
Understand the role of key stakeholders in supporting older adults personal health information management
We interviewed stakeholders (e.g., family, friends, providers) who help older adults manage personal health information to understand their role, including what helps them in that role and barriers they face.
Create a model of the health information management needs and practices of older adults and key stakeholders
Status: In Progress
We will develop a model of older adult personal health information management based on what we've learned. The model will take into consideration information needs, social networks, and environmental context.
Develop design recommendations to meet the personal health information management needs of older adults.
Status: In Progress
We will create personas and scenarios to represent the people we've talked to, including older adults and other stakeholders, as the basis for design concepts. We will collaborate with older adults and stakeholders to make sure we're on the right track.
We will iteratively refine these concepts into design recommendations for broad dissemination.
The project was awarded a grant by AHRQ #1R01HS022106.